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After delirium: recovery and what to expect
Many people recover well after delirium, but recovery varies. Some recover quickly; others take weeks or months, and some have lasting changes in thinking or independence.
The infection has been treated, the drip has been removed, and staff are discussing going home. Yet your mother is still not quite herself. Recovery from delirium is usually slower than families expect.
Recovery is gradual, and uneven
Most delirium improves over days once the causes are treated. But the mind’s recovery often lags behind the body’s. A person can be walking and eating well while their concentration, memory and confidence are still catching up. Progress is also uneven: a good day, then a flat one, then two better ones. Recovery can vary from day to day, but a new deterioration needs medical assessment now; do not put it down to normal fluctuation.
Some episodes last longer. Delirium can persist for weeks, sometimes months, especially in people with dementia or after a severe illness, and it can carry on after the causes found so far have been treated.
Can someone leave hospital while still confused from delirium?
Sometimes. Delirium may continue after someone is medically ready to leave hospital. The team should assess whether their needs can be met safely at home or in another care setting. Tell staff what help you can realistically provide. Ask for a written plan covering:
- What is still causing concern, and whether the causes have been treated.
- Help with medicines, meals, drinking, washing, walking and supervision.
- Changes to medicines and any swallowing or fluid advice.
- Who will review recovery, when, and whom to contact sooner.
Ask for delirium to be recorded in the discharge information sent to their usual doctor. A sudden deterioration after discharge needs medical assessment now; follow Get help now.
What helps at home
The same things that treat delirium in hospital help recovery at home:
- Regular drinks and meals, little and often if appetite is poor
- Glasses and hearing aids on, clean and working
- A steady routine, with daylight and activity in the day and quiet at night
- Getting up and moving every day, building up gradually
- Familiar faces, and one conversation at a time rather than a noisy room
- A calendar and clock in view
Follow any discharge advice about swallowing, food texture, limits on how much the person should drink, walking aids and whether someone needs to help them. Do not give food or drink if the person is too drowsy to swallow safely.
Sleep often takes weeks to settle. Short naps are fine; gently discourage long daytime sleeps that stop them sleeping at night.
When delirium persists
If the person is still confused or unusually drowsy, ask the team what they think is causing this and what happens next. Delirium can last for weeks or months, even after the causes found so far have been treated. Continuing symptoms need a clear plan for care and medical review.
Ask for a review if the person is not improving, or if no clear cause has been found. You do not need to wait several weeks before raising a concern. The doctors should check whether delirium still explains the symptoms and whether another illness could be causing or contributing to them.
This may mean looking again for common problems, such as infection, dehydration, constipation or the effects of medicines. Sometimes a less common condition needs specialist tests and treatment.
One example is autoimmune encephalitis, in which the immune system causes inflammation in the brain. It can affect memory, thinking and behaviour, and can cause delirium. Another possibility is ongoing seizures without obvious shaking. These are uncommon conditions. The doctors decide which tests are needed from the person’s symptoms, examination and results so far.
You could ask: “Could something else be causing this? Would advice from another specialist help?”
Ask who will review the person, what will be checked next and when you will hear the findings. Families can help by describing what has changed and when. The medical team is responsible for deciding which causes to investigate.
If dementia is being considered, ask how the person’s memory, thinking and everyday abilities before this illness have been taken into account. A poor score on a memory or thinking test during delirium is not enough on its own to diagnose dementia. Necessary care arrangements may still be needed. Ask how possible recovery has been considered and when the assessment and care plan will be reviewed.
Some people with continuing delirium remain seriously unwell. If the person is becoming weaker or developing further problems, ask the team about the chance of recovery and the risk that they might die. Continuing delirium needs assessment and care, including attention to comfort and distress.
Practical care and support should continue while the team reviews the illness. A sudden deterioration needs medical assessment now; follow Get help now.
See also: Still confused after antibiotics for a UTI? and Can someone die from delirium?
Illustrated stories about recovery
Another week follows a family as delirium continues after the original illness starts to improve.
Months, and no recovery follows a longer course. This two-part story includes a death after prolonged illness.
Will they get fully back to normal?
Many people return fully to their old selves. Some do not; memory and concentration can remain below what they were before the illness, particularly in older people, after long or severe episodes, and in those with dementia. Doctors can’t predict this well for any one person, and we would be wary of anyone who claims otherwise. Time, help to regain everyday skills, good sleep, food and drink all help.
If memory or thinking is still affected, ask the treating team what follow-up is planned and who to contact if you are worried. Review can look for ongoing causes and decide whether further assessment is needed, taking account of the person’s recovery and how they were before the illness. Do not wait for a planned appointment if there is a new sudden deterioration; follow Get help now.
Memories of the episode
Some people remember nothing. Many remember fragments, and some remember a great deal, vividly; the hallucinations and fears can return later as unwanted memories that keep coming back, particularly after intensive care.
Talking helps. Fill in the gaps gently, explain what was real and what was the illness, and let them tell you what they experienced, more than once if they need to. Explaining that it was delirium, a recognised medical condition with a name, helps people make sense of frightening memories. If distressing memories, nightmares or anxiety keep returning, raise this with their doctor; there is help for this.
Watching for it coming back
One episode of delirium makes another more likely. Know the early signs and act quickly if they appear: new confusion, unusual sleepiness, sudden suspicion, or being awake at night and asleep by day. Delirium (acute confusion) needs medical assessment now; follow the routes on Get help now. Knowing the signs may help you spot another episode sooner.
- Recovery may be slow and uneven, but a new deterioration should not be dismissed as normal fluctuation.
- Drinks, meals, moving, glasses and hearing aids, routine and daylight all keep working at home.
- Continuing confusion or unusual drowsiness needs a care and review plan. If the person is not improving, ask whether the diagnosis and possible causes need another look. You do not need to wait weeks before asking.
- A dementia diagnosis needs more than a poor score on a memory or thinking test during delirium; the person’s abilities before the illness are important.
- Recovery is not always complete. Ask about follow-up and how possible recovery has been considered in decisions about care.
- Talking about the episode, and naming it as delirium, helps people make sense of what happened.
- Know the early signs. Delirium (acute confusion) needs medical assessment now.
More questions
How long does delirium last?
Will they remember any of this?
Does delirium lead to dementia?
All questions families ask